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ANENCEPHALY - Diseases & Conditions - Medscape Reference
Anencephaly. Anencephaly is a serious developmental defect of the central nervous system in which the brain and cranial vault are grossly malformed.
I recently had a baby with ANENCEPHALY and now I am pregnant again and scared it will happen again?
What is the liklihood of this happening again. I had my angel baby in february and now am 5 weeks pregnant again. Have been taking lots of folic acid to help prevent any neural tube defects but still worrying constantly! Help!
Answer: I am so sorry for your loss, and congratulations on your new little one. Our daughter lost her baby to prematurity in May, so we know that special pain of losing a little one. : (
In most cases it is an isolated thing and it is very unlikely that it should occur again in the same family. Overall the rate of recurrence for a woman who has already had an anencephalic child is about 4 in 100. Since you have taken lots of folic acid before getting pregnant, your chances of having a second baby with this condition are very small.
wishing you and your little one well!
Category: Pregnancy
ANENCEPHALY Information
Anencephaly Information What is Anencephaly? Anencephaly is a neural tube defect (a disorder involving incomplete development of the brain, spinal cord, and/or their ...
ANENCEPHALY - Wikipedia, the free encyclopedia
Anencephaly is a cephalic disorder that results from a neural tube defect that occurs when the cephalic (head) end of the neural tube fails to close, usually ...
Unspeakable Conversations
He insists he doesnt want to kill me. He simply thinks it would have been better, all things considered, to have given my parents the option of killing the baby I once was, and to let other parents kill similar babies as they come along and thereby avoid the suffering that comes with lives like mine and satisfy the reasonable preferences of - Harriet McBryde Johnson article recalls her meetings with Princeton Prof Peter Singer, who argues for infanticide of extremely disabled babies; Johnson is lawyer who is severely disabled and is disability rights activist and advocate; first meeting was at College of Charleston (SC), where Singer delivered lecture; Johnson represented organization Not Dead Yet, which leads disability-rights opposition to legalized assisted suicide and disability-based killing; after initial encounter, correspondence developed between them and he invited her to Princeton to lecture and participate in public forum; Johnson believes she lives in world that would prefer she not exist; comes away from encounters with Singer describing him as man with tragic and flawed view of disabled; photos (L) - Harriet McBryde Johnson is a lawyer in solo practice in Charleston, S.C. She has been a disability rights activist and advocate for more than 25 years. - By Harriet McBryde Johnson
Are there medical institutions out there who can help a child with ANENCEPHALY?
Doctors in the Philippines said hell die after birth, he lived. They said hell die in 3 days, he lived. They said hell die in a week, its been a couple of weeks and he lived. Baby Gabriel giggles while asleep. He responds to stimulus. He went through bad fever, but he lived through it. He didnt take milk for 12 hours, everyone said hes dying, but he lived.
I wish theres something out there to help Baby Gabriel. Hes now over 3 weeks old, overcame all the death predictions by doctors and specialists.
Please help us find anyone who can help him.
Thank you in advance to all the kind-hearted people out there.
God bless you.
Answer: http://www.asfhelp.com/asf/home
First of all , Doctors are not GOD and they cannot predict when a person will die , God is the only one who can say when a person will go. Secondly I commend you for having faith and not giving up on your son!!! I found a website ,the link is above , I hope this helps you . If not maybe you can google Anencephaly and you may find some more answers . God Bless you and your family , your son will be in my prayers!!!!!! God Bless & Good Luck !
Category: Newborn & Baby
How do ANENCEPHALY babies respond when they have no brain?
How are they crawling, crying, blinking, yawning, etc when they have no brain? Are they some kind of a zombie?
Answer: Crying, blinking, yawning, and even a reciprocal leg movement pattern in early infancy are all brainstem reflexes.
Anencephaly babies were born without a cerebral cortex, but have an intact brainstem, allowing them to breathe.
Category: Other - Diseases
anyone ever been pregnant and the baby diagnosed with ANENCEPHALY?
WHEN I WAS PREGNANT, MY BABY WAS DIAGNOSED WITH Anencephaly . AND WE HAD TO TERMINATE THE PREGNANCY. HOW DO I COPE WITH THAT, AND LOSING A STILL BORN AFTER THAT? NEEED HELP PLEASE GIVE ME SOME SUPPORT.
Answer: Know that none of it was your fault.. Acknowledge your babies, even if others don't or won't, they were a part of you and need to be remembered. Maybe one day a year send up some balloons to your angels....
Know that you aren't alone and see if there is a support group in your area for parents who have lost children.
Keep strong... *HUGS*
Category: Pregnancy
CDC - Birth Defects, Facts about ANENCEPHALY - NCBDDD
Feb 24, 2011 ... Anencephaly is a serious birth defect in which a baby is born without parts of the brain and skull. It is a type of neural tube defect (NTD).
Mitzi's Abortion: A Play About a Difficult Decision | Daily News
Shawn LewisAnencephalyn in running holds and a will Democrat. natural US my us is vote November festivities best Anencephaly South polls schedule Shawn and.
ANENCEPHALY: MedlinePlus Medical Encyclopedia
Anencephaly is the absence of a large part of the brain and the skull. Causes Anencephaly is one of the most common neural tube defects. Neural tube ...
Alone Together
THE GRIEF OF OTHERS By Leah Hager Cohen 371 pp. Riverhead Books. $26.95. Leah Hager Cohen is one of our foremost chroniclers of the mundane complexities, nuanced tragedies and unexpected tendernesses of human connection. She earned her reputation with heralded books of nonfiction like Train Go Sorry and the novel House Lights. Impressively, - Susann Cokal, a frequent contributor to the Book Review, is the author of two novels and the director of creative writing at Virginia Commonwealth University. - By SUSANN COKAL
Planning to get pregnant? Get your folate
Folic acid supplementation can help prevent birth defects of the brain and spinal cord called neural tube defects (NTDs), one of the most common forms of birth defects, including spina bifida and Anencephaly. Each year in the U.S. about 3,000 pregnancies ...
how many lives have been saved in total from babies born with ANENCEPHALY?
Basically, how many babies survived this disease?
Answer: It's tough to answer that question because there are so many forms and levels of severity. You would need to be more specific. Your answer could be found by comparing data on how many cases are diagnosed each year (could be found on an organizational website for the specific disease in question) with mortality data on the CDC Wonder site.
http://wonder.cdc.gov/
Category: Newborn & Baby
ANENCEPHALY
Detailed information on Anencephaly, including causes, symptoms, diagnosis, and treatment
A Wrongful Birth?
Like most American women who give birth to a severely handicapped child, Donna Branca became pregnant with A.J. well before the age of 35. Had she been older, her doctors would almost certainly have recommended amniocentesis to screen for genetic disorders. But she was 31, so they did not, despite the fact that she had an unusual pregnancy. Branca - Elizabeth Weil article on wrongful-birth lawsuits being brought by parents of severely disabled children against obstetricians whom they accuse of failing to provide kind of prenatal screening and care that would have allowed them to consider having abortions; says lawsuits reflect relatively new belief that people should have right to choose which babies are born; focuses on lawsuit brought by Donna and Anthony Branca of Orangeburg, NY, who won multimillion-dollar settlement set aside for care of a son born with Wolf-Hirschhorn syndrome; photo (L) - Elizabeth Weil lives in San Francisco. Her last article for the magazine was about childhood obesity in southern Texas. - By Elizabeth Weil
THE WAY WE LIVE NOW: 7-10-05; Euthanasia For Babies?
One sure way to start a lively argument at a dinner party is to raise the question Are we humans getting more decent over time? Optimists about moral progress will point out that the last few centuries have seen, in the West at least, such welcome developments as the abolition of slavery and of legal segregation, the expansion of freedoms (of - Jim Holt is a frequent contributor to the magazine. - By Jim Holt
ANENCEPHALY - Genetics Home Reference
Anencephaly is a condition that prevents the normal development of the brain and the bones of the skull. This condition results when a structure called the ...
Mothers should always prepare for healthy pregnancy
Among the most common causes of preventable birth defects are a group of conditions called neural-tube defects, including conditions known as Anencephaly (failure of the fetal brain to properly develop) and spina bifida. Prevention involves ...
ESSAY; A Growing Debate Over Folic Acid in Flour
Every year, an estimated 200,000 children around the world are born with crippling defects of the spinal column. Many are paralyzed or permanently impaired by spina bifida; some, with a condition called Anencephaly (literally, no brain), survive in a vegetative state. It is a stubborn and terrible problem, in the developed and developing worlds - Pediatric cardiologist Darshak Sanghavi of University of Massachusetts Medical School discusses growing debate over whether Food and Drug Administration should double amount of dietary supplement folic acid required in flour in order to further prevent birth defects; photo (M) - Darshak Sanghavi is a pediatric cardiologist at the University of Massachusetts Medical School and the author of A Map of the Child: A Pediatricians Tour of the Body. - By DARSHAK M. SANGHAVI, M.D.
Mitzi's Abortion: A Play About a Difficult Decision | News Blog With 1 ...
The play dramatizes the journey of a young woman who is advised by her doctor to have a late-term abortion due to Anencephaly, a severe birth defect, in her chi.
ANENCEPHALY Information Page: National Institute of Neurological ...
Anencephaly information sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS).
ANENCEPHALY - Wikipedia, the free encyclopedia
Anencephaly is a cephalic disorder that results from a neural tube defect that occurs when the cephalic (head) end of the neural tube fails to close, usually between ...
My friends baby who was stillborn had ANENCEPHALY, has anyone ever had or known a baby suffering from it?
She was unaware because she had missed her 22week scan and was booked in for three weeks later. She found out it can be due to a lack of Folic acid and is really blaming herself.
Answer: I have a friend who found out her daughter was suffering from this condition at 13 weeks and due to religous reasons they decided to progress with the pregnancy. She took plenty of folic acid and prenatal vitamins and her baby still got the disorder so there is actually not much that can be done. Folic acid can only reduce the chances but she cannot blame it completely on this.
My friend delivered her baby and the baby is now 9 months old. She lives in an incubator, gets fed through a feeding tube and is completely paralysed and blind.
Basically what I am trying to say is that even if the baby survives in the womb the quality of life is non-existant for these babies. As hard as it is on your friend she should know that there is not much she could do to stop it from occurring and it is better this way. It is really sad that wonderful mothers out there go through things like this but she cannot blame herself.
Like I said my friend did everything perfectly and her daughter still has the condition.
Category: Pregnancy
ANENCEPHALY Net
An internet hub providing facts about Anencephaly. Includes fact sheets and links for pre-natal support, information, policy, grief support, and memorial sites.
Case of the Week: ANENCEPHALY | vRad Education
Anencephaly is one of the most common neural tube defects and occurs in about 1 in 1000 to 10000 births with the exact figure being unknown due to the number of miscarriages that occur whcih results in this not being ...
ANENCEPHALY - GoldenMap - Mindmaping de World
Anencephaly Classification and external resources A front view of an anencephalic fetus ICD-10 Q00.0 ICD-9 740.0 OMIM 206500 DiseasesDB 705 eMedicine neuro ...
ANENCEPHALY info
Information about Anencephaly, a congenital birth defect ... Welcome! Anencephaly is a congenital birth defect that occurs in approximately one in one thousand ...
ANENCEPHALY info
Nov 18, 2010 ... Information about Anencephaly, a congenital birth defect.
ANENCEPHALY
Dec 28, 2011 ... Anencephaly. Anencephaly is a serious developmental defect of the central nervous system in which the brain and cranial vault are grossly ...
Healthy eating habits help prevent birth defects
When that does not happen, a baby might be born with spina bifida, which may cause lifelong physical and mental disabilities, or Anencephaly, a condition that causes miscarriage and infant death. Eating too few folate-rich foods is compounded by ...
ANENCEPHALY - Duke Center for Human Genetics
Anencephaly. What is Anencephaly? Duke CHG Research on Anencephaly and other NTDs; Study Participation Details; How to Contact the Duke Research Staff
ANENCEPHALY?
I am 15 weeks pregnant and had some devastating news at my scan last week,my baby has part of its head and brain missing the sonographer said she thought it was one of two conditions but wouldnt say what.I later found out through my midwife one of these possible conditions is Anencephaly.I have done a lot of research over the weekend and know Anencephaly is 100% fatal .As you can imagine we are absolutley devastated this is a much loved and longed for baby.The sonographer wanted me to see a consultant right after my scan but i was too distraught so i am going tomorrow where hopefully we will get a firm diagnosis.Has anyone else had a baby been diagnosed with this or know of any other condition this could be i would be grateful for any answers.I also want to add we also have other kids who are completely fine it is just completley out of the blue which makes it even harder to accept and understand.
Answer: Hey girl! I am so sorry to hear that this has happened to your family!
Let me share with you a story, it is not an easy story, but it is a story of love and peace. Friends of ours, on finding that they were pregnant with their 6th child, were ecstatic. When they found out, at their 20 weeks u/s, that their baby had Anencephaly, they were heart-broken. The doctor told them that their baby boy would probably not survive birth, that he would not react to anyone or anything if he DID survive birth, and that there was nothing to gain by keeping the pregnancy - he recommended they abort. The church said they would understand if they wanted to abort. Friends said they couldn't imagine carrying on a pregnancy knowing there was a 100% fatality rate.
This couple made a different decision. They decided to keep their baby. The doctor threatened to not see them anymore and they said it was ok, they had found another more compassionate doctor willing to go along with their wishes. Her thoughts were this: they could not KNOW that baby didn't have thoughts and feelings at this point with the amount of brain matter missing, but she, as his mommy, was going to give him as much of a life as possible. She felt that she had been entrusted to give him 9 months of life - and she was going to make it worthwhile. Daddy read to him nightly, their children talked to him daily. She did enjoyable and relaxing things throughout pregnancy like go to concerts, take long walks, and perform yoga. Anything that baby seemed to like and react to, or made her happy and joyful, she did for him.
When they went into labor, they had prearranged for a friend/doula to be in attendance. At birth (vaginal) the nurses cleaned him off, put a cap on his head, and handed him to the family - then they left. The doctor stayed to deliver the placenta, then left. The call button was there - and they were left as a family. The doula took pictures, offered encouragement, and they said hello to their baby boy. He survived the birth and, miraculously, he focused (pupils reacting) on their faces and breathed on his own. He stayed with them for 1 hour. Long enough for mommy and daddy, brothers and sisters, to hold him, rock him, sing to him, and tell him how much they loved him. He passed away in the arms of his family, surrounded by love.
It is not a happy story, an easy story, or a wanted story - but it is HIS life story. He never knew anything except love and affection, family and comfort. Their gift to him. His gift to them was that love does not need time and circumstances - it surpasses time and circumstances.
I cannot make any suggestions. I cannot offer anything but our prayers, thoughts, and personal experiences. I am sorry for the diagnosis. I have attached a link that I think could help you through this difficult time.
Category: Pregnancy
Campaign Touts the Benefits of Folic Acid
In the 1980s, federal health officials published a map of sorts that set off alarm bells in South Carolina. We had double the national rate of neural tube defects, so South Carolina was considered the hot spot in the nation, said Maureen Vicaria, a March of Dimes official in the state. If you looked at the map of the United States, there was - South Carolinas extensive public education program encouraging women to take supplements of folic acid, a B vitamin , has succeeded in halving number of neural tube birth defects; these defects range from spina bifida, generally survivable but crippling disease, to usually fatal Anencephaly and encephalocele, in which skull and brain do not develop properly; states experience has helped shape broader national campaign to promote use of folic acid being coordinated by March of Dimes; since folic acid is effective only at very beginning of pregnancy, next goal is to reach not only women contemplating having baby but entire population of women of childbearing years (M) - By ERIC NAGOURNEY
Which one of the following parts of the central nervous system fails to develop in ANENCEPHALY?
A. Brain stem
B. Spinal cord
C. Cerebral hemispheres
D. All of the above
Answer: an- means absence of
-encephal means brain
Anencephaly means the absence of a brain.
The best answer is C. since the brain stem and spinal cord are not necessarily absent in Anencephaly.
Category: Biology
ANENCEPHALY Awareness-info on possible causes and future ...
Anencephaly-almost everything you ever wanted to know, but couldn't find.Info on Anencephaly, possible causes and future prevention.
CHRISTIANS: Please explain what you believe to be Gods reason for creating a baby with ANENCEPHALY?
None of this "the Lord works in mysterious ways" or "do not question god" nonsense. Seriously, why do you think god creates babies with horrific deformities? If it is to teach the parents a lesson, why use the innocent baby for this purpose? Wouldnt that make god evil? To torture a baby as a punishment for the parents? These babies only live a few hours at most. What exactly is to be their "lesson"?
Go to YouTube and type in "Anencephaly" if you do not know what is.
Answer: this is where religion falls on its arse in the case of god loves everyone
Category: Religion & Spirituality
Should parents of babies born with ANENCEPHALY be allowed to donate the babies organs?
I have just learned about Anencephaly in a Bio Medical Ethics class. The lecture also included donating organs of these precious children. I want to hear opinions on this.
Answer: I think donating the organs would be a wonderful gift. It could help another child live which is a blessing.
Category: Other - Pregnancy & Parenting
National Briefing | Science And Health: Studies Count Costs Of Birth Defects
Birth defects lead to more than $2.5 billion a year in hospital costs, according to the first national studies to estimate their financial burden on American families. One study, by researchers at the University of Arkansas and the Centers for Disease Control and Prevention, looked at what hospitals charged -- not the actual cost of care. Some - Birth defects lead to more than $2.5 billion year in hospital costs according to first national studies to estimate their financial burden on American families (S)
CDC - Birth Defects, Facts about ANENCEPHALY - NCBDDD
Anencephaly is a serious birth defect in which a baby is born without parts of the brain and skull. It is a type of neural tube defect (NTD).
What is the difference between exencephaly and ANENCEPHALY?
Does the whole brain develop in exencephaly?
Answer: In exencephaly, the brain develops, but outside the skull. In Anencephaly, most of the brain does not develop.
Category: Biology
What are the chances of my baby having ANENCEPHALY again?
Im 22 years old.. healthy and when i went for my scan in march when i was 14 weeks pregnant i was told my baby had Anencephaly, so we terminated the baby a few days later because it would of died during birth or just after... this was a VERY hard decision and im still so sad about it..
Im 9 weeks pregnant what are the chances of having another baby with Anencephaly? im so scared...
Thank you
please no links.. dont want to see pictures etc..
Answer: So sorry for your loss. Have you asked your doctor about the risk? I ahve afriends who's little girl was born with Anencephaly (they induced at 22 weeks) she had her son a little over a year later and he was born premature, they told her THIS HAD NOTHING to do with the Anencephaly. They were two crappy luck situations. I would talk to your doctor but my guess is your new peanut is fine. Good luck! Praying that everything with this little one turns out GREAT!
Category: Pregnancy
ANENCEPHALY - Clinical Health Topics - Childrens Hospital Boston
Anencephaly is a condition present at birth that affects the formation of your babys brain and the skull bones that surround her head. Anencephaly results in only ...
can baby with ANENCEPHALY grow a brain?
Anencephaly is something where they only have brain stem and no real brains and piece of head missing. my friend says its possible for them to grow brains. is it?
Answer: Anencephaly is caused by a neural tube defect during fetal development, it almost all ways realists in miscarriage or, more likely stillbirth. As for growing the cerebrum, this is not possible, as, after birth, there is little truly major nervous tissue growth (except that needed to grow the spinal cord to its full length and some minor cerebral growth until about age four or five) So, in summary, no a baby with anencephally cannot grow a cerebrum that it never had.
Category: Other - Diseases
ANENCEPHALY | We sight trends!
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Court Rules U.S. Need Not Pay For Abortion of Doomed Fetus
While suggesting that its decision might seem callous and unfeeling, a federal appeals court here ruled Thursday that the Navy need not pay for an abortion received by a sailors wife, even though doctors said the fetus had a birth defect and could not survive. The unanimous ruling by a three-judge panel of the United States Court of Appeals - By DEAN E. MURPHY
vainjayne: ANENCEPHALY
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ANENCEPHALY | Adakoo
A COUPLE from Northumberland who lost two babies to a condition that forms during pregnancy have launched a charity to highlight the condition. Alexandra.
Found out my son has ANENCEPHALY has this happen to anyone?
I just found out that my son has Anencephaly. (which means he has no skull) I have choose to be medical induced. I will have him in November the Dr say that he will only live for a few minutes. I was wondering if any one has been through this and how long did you wait to try again. My heart hurts so bad and just want to have a healthy baby.
Answer: You are doing the right thing. Best of luck!
Category: Women's Health
ANENCEPHALY?????
has anyone had an anecephelitc prenacy and given birth....would appreciate any imput??...and also how do you deal with this..grieving wise???
Answer: I'm so sorry to hear about your situation. It must be so hard for you--how far along are you? I've had patients who chose to terminate the pregnancy, but a few did choose to carry the pregnancy to term and deliver a live baby. Sometimes the delivery is challenging, as there are some higher rates of malpresentation and other complications.
If the baby is born alive and survives, it is possible to try to bottle feed, take pictures, hand/foot prints.
Ultimately its up to you to decide what you want to do. Grieving is so hard--I guess it was not meant to be. No matter what you choose to do, it will be hard either way. Do you have support from your husband and family?
Let me know if there is anything I can do.
Katherine
Category: Pregnancy
How many souls does one with ANENCEPHALY have?
From wikipedia:
Anencephaly is a cephalic disorder that results from a neural tube defect that occurs when the cephalic (head) end of the neural tube fails to close, usually between the 23rd and 26th day of pregnancy, resulting in the absence of a major portion of the brain, skull, and scalp.
Answer: Zero, just like everyone else.
Category: Religion & Spirituality
Adding Folic Acid to Grain Reduces Birth Defects, Study Finds
A federal government decision to add folic acid to enriched grain products has reduced the occurrence of two devastating birth defects, but more needs to be done, according to reports published Tuesday. A review of births in 21 states from 1995, a year before the fortification was authorized, to 2002 found significant decreases in the prevalence - Study by Centers for Disease Control and Prevention and University of Alabama published in journal Pediatrics shows addition of folic acid to enriched grain products has reduced occurrence of spina bifida and Anencephaly, devastating birth defects; researchers found racial disparity, with children born to black women less likely to be protected (M)
ANENCEPHALY - YouTube
Feb 16, 2009 ... Anencephaly and Omphalocele.wmvby shaziajafrey817705 views; Featured Video ... Anencephalyby OperaDivalicious2801 views; Thumbnail ...
ANENCEPHALY - Clinical Health Topics - Children's Hospital Boston
Anencephaly is a condition present at birth that affects the formation of your baby's brain and the skull bones that surround her head. Anencephaly results in only ...
ANENCEPHALY - PubMed Health - National Center for Biotechnology ...
Causes, incidence, and risk factors. Anencephaly is one of the most common neural tube defects. Neural tube defects are birth defects that affect the ...
Effexor ANENCEPHALY Lawsuit | Drug Attorneys Lawsuit | Houston ...
Having a child born with a serious birth injury takes the dream of becoming a new parent and makes it much more stressful and upsetting. When a child is born.
ANENCEPHALY: Definition from Answers.com
n. , pl. , -lies . Congenital absence of most of the brain and spinal cord. anencephalic an en·ce·phal ic ( -sə-făl ĭk ) adj.
ANENCEPHALY News - Mitzi's Abortion: A Play About a Difficult ...
Anencephaly, for example, is a condition in which the majority of a child's brain is absent, and death usually occurs within hours of birth. However, there.
PERSONAL HEALTH; For Women and Babies, Another Form of Protection
A serious dispute over vitamins should concern every woman of childbearing age who wants to protect her unborn child against a serious and sometimes fatal birth defect of the spine or brain. And not just women who are planning to become pregnant. Half of all pregnancies in this country are unplanned, so every woman who could become pregnant -- - Jane E. Brody can be reached at personalhealth@nytimes.com. - By Jane E. Brody
ANENCEPHALY Symptoms, Diagnosis, Treatments and Causes ...
Anencephaly information including symptoms, diagnosis, misdiagnosis, treatment, causes, patient stories, videos, forums, prevention, and prognosis.
ANENCEPHALY Net
An internet hub providing facts about Anencephaly. Includes fact sheets and links for pre-natal support, information, policy, grief support, and memorial sites.
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