Ehlers danlos syndrome - Ehlers–Danlos syndrome - Wikipedia the free encyclopedia

Ehlers danlos syndrome : Videos

EHLERS DANLOS SYNDROME EHLERS DANLOS SYNDROME Ehlers danlos syndrome doc Rated: 4.9126215     Duration: 358 seconds     Video type: YouTube     Hosted by: www.youtube.com on Sun, 16 Dec 2007 21:46:29 PST	Life with EHLERS DANLOS SYNDROME Life with EHLERS DANLOS SYNDROME My everyday life with EDS Rated: 4.9019608     Duration: 175 seconds     Video type: YouTube     Hosted by: www.youtube.com on Sat, 24 Oct 2009 18:04:27 PDT	EHLERS DANLOS SYNDROME EHLERS DANLOS SYNDROME How I've been affected living with Ehlers danlos syndrome Rated: 5     Duration: 240 seconds     Video type: YouTube     Hosted by: www.youtube.com on Tue, 15 Feb 2011 08:53:38 PST	What Is Ehlers-Danlos Syndrome? What Is Ehlers-Danlos Syndrome? How I've been affected living with Ehlers danlos syndrome Rated: 5     Duration: 240 seconds     Video type: YouTube     Hosted by: www.youtube.com on Tue, 15 Feb 2011 08:53:38 PST Rated: 5     Duration: 234 seconds     Video type: YouTube     Hosted by: www.youtube.com on Thu, 11 Feb 2010 07:57:08 PST
EHLERS DANLOS SYNDROME EHLERS DANLOS SYNDROME A no frills basic info video on EDS! Rated: 4.8571429     Duration: 346 seconds     Video type: YouTube     Hosted by: www.youtube.com on Wed, 08 Jul 2009 19:55:33 PDT	Ehlers-Danlos Syndrome.... Nothing Hurts in my World. Ehlers-Danlos Syndrome.... Nothing Hurts in my World. I made this small piece about Ehlers Danlos, a connective tissue disorder. Sadly, many children and adults go on for years suffering from this ... Rated: 4.9195404     Duration: 191 seconds     Video type: YouTube     Hosted by: www.youtube.com on Tue, 22 May 2007 00:25:03 PDT	EHLERS DANLOS SYNDROME - Dying to Live EHLERS DANLOS SYNDROME - Dying to Live I made this video to represent our families battle with Ehlers-Danlos Syndrome type IV. We have been working with a foundation called Ehlers ... Rated: 5     Duration: 218 seconds     Video type: YouTube     Hosted by: www.youtube.com on Thu, 11 Mar 2010 17:15:56 PST	Examples of hypermobility with EHLERS DANLOS SYNDROME Examples of hypermobility with EHLERS DANLOS SYNDROME I wanted to explain in more detail and show some of the hypermobility with Ehlers Danlos and how it affects my life as well as all others who have ... Rated: 4.897059     Duration: 157 seconds     Video type: YouTube     Hosted by: www.youtube.com on Sun, 03 May 2009 20:14:18 PDT
Do you have Ehlers-Danlos Syndrome? Do you have Ehlers-Danlos Syndrome? Ehlers-Danlos Syndrome is a connective-tissue disorder and is often undiagnosed. These r some of the symptoms of the disorder. See if you or ... Rated: 4.8620691     Duration: 135 seconds     Video type: YouTube     Hosted by: www.youtube.com on Thu, 11 Jun 2009 20:11:21 PDT	Vascular EHLERS DANLOS SYNDROME - Vote for HOPE Vascular EHLERS DANLOS SYNDROME - Vote for HOPE Vote for Hope at - apps.facebook.com Vascular Ehlers danlos syndrome, though considered a "rare" disorder, affects thousands of families ... Rated: 5     Duration: 270 seconds     Video type: YouTube     Hosted by: www.youtube.com on Sun, 17 Jan 2010 17:41:27 PST	Ehlers-Danlos: A Mystery Ehlers-Danlos: A Mystery Video is no longer available at the request of Lynn Sanders. Video offered a short excerpt from a US program discussing Ehlers-Danlos Syndrome. To ... Rated: 4.9245281     Duration: 311 seconds     Video type: YouTube     Hosted by: www.youtube.com on Mon, 05 Jan 2009 14:08:17 PST	Life with dysautonomia caused by EHLERS DANLOS SYNDROME Life with dysautonomia caused by EHLERS DANLOS SYNDROME 9.5 months ago I entered the world of dysautonomia...it's been a wild ride Rated: 5     Duration: 185 seconds     Video type: YouTube     Hosted by: www.youtube.com on Tue, 15 Feb 2011 08:43:51 PST
Real Life Living with Ehlers-Danlos Syndrome episode 1 Real Life Living with Ehlers-Danlos Syndrome episode 1 This is about me living with a connective tissue disorder, Ehlers-Danlos Syndrome! Day to day living is very difficult, but with the support of ... Rated: 5     Duration: 600 seconds     Video type: YouTube     Hosted by: www.youtube.com on Mon, 20 Apr 2009 15:51:33 PDT	Ehlers-Danlos Syndrome - CMC Splints Ehlers-Danlos Syndrome - CMC Splints Ehlers-Danlos Syndrome is managed with proper splinting. These splints hold my thumbs on, made by the best hand therapist OT in the world. I just ... Rated: 5     Duration: 115 seconds     Video type: YouTube     Hosted by: www.youtube.com on Sat, 14 Feb 2009 20:06:41 PST	Ehlers-Danlos Syndrome and the National Foundation Ehlers-Danlos Syndrome and the National Foundation Ehlers-Danlos Syndrome (EDS) is a heterogeneous group of heritable connective tissue disorders. It is a progressively debilitating syndrome that ... Rated: 5     Duration: 21 seconds     Video type: YouTube     Hosted by: www.youtube.com on Wed, 18 Apr 2007 10:29:07 PDT	Ehlers-Danlos syndrome: Take Your Time Ehlers-Danlos syndrome: Take Your Time Don't let time pass by just because you're not feeling well. Rest, and try again. Rated: 5     Duration: 177 seconds     Video type: YouTube     Hosted by: www.youtube.com on Sat, 21 Feb 2009 12:37:07 PST
EHLERS DANLOS SYNDROME : Living with EDS EHLERS DANLOS SYNDROME : Living with EDS EDS is a rare genetic condition that affects connective tissue. As part of EDS Awareness Month (May 2011) I made this short film to raise ... Rated: 5     Duration: 537 seconds     Video type: YouTube     Hosted by: www.youtube.com on Sun, 15 May 2011 03:27:13 PDT	Ehlers-Danlos Syndrome: Letting people in, getting through Ehlers-Danlos Syndrome: Letting people in, getting through Learn what you need to, let people who care help you through. Note: I do say, "it's not that bad" in the video, which may only be my ... Rated: 5     Duration: 391 seconds     Video type: YouTube     Hosted by: www.youtube.com on Sun, 20 Sep 2009 21:27:22 PDT	Silver Ring Splints for EHLERS DANLOS SYNDROME Silver Ring Splints for EHLERS DANLOS SYNDROME Splints/Braces are highly effective in stabilizing joints in those with EDS. This is not limited to splints for large joints like knees, but also ... Rated: 5     Duration: 488 seconds     Video type: YouTube     Hosted by: www.youtube.com on Thu, 10 Sep 2009 04:31:59 PDT	EHLERS DANLOS SYNDROME and my symptoms EHLERS DANLOS SYNDROME and my symptoms I describe what Ehlers danlos syndrome is and my primary symptoms. Rated: 5     Duration: 437 seconds     Video type: YouTube     Hosted by: www.youtube.com on Thu, 02 Dec 2010 13:38:04 PST
Vascular Complications of Ehlers-Danlos Syndrome: State-of-the-Art in CT Angiography and 3D Mapping Vascular Complications of Ehlers-Danlos Syndrome: State-of-the-Art in CT Angiography and 3D Mapping Vascular Complications of Ehlers-Danlos Syndrome: State-of-the-Art in CT Angiography and 3D Mapping Rated: 5     Duration: 772 seconds     Video type: YouTube     Hosted by: www.youtube.com on Mon, 14 Mar 2011 13:22:22 PDT	Living with Ehlers-Danlos Syndrome (EDS) Living with Ehlers-Danlos Syndrome (EDS) Interview is with Tammy Boykins of Rib Mountain, Wisconsin. The information below is from Tsilos Schoener, Tammy's sister. "Tammy was ... Rated: 5     Duration: 360 seconds     Video type: YouTube     Hosted by: www.youtube.com on Mon, 25 Apr 2011 08:29:23 PDT	Ehlers-Danlos Syndrome Ehlers-Danlos Syndrome With this video, I aim to raise awareness about Ehlers-Danlos Syndrome. It is a seriously under-diagnosed condition and treatment options are ... Rated: 4.967742     Duration: 177 seconds     Video type: YouTube     Hosted by: www.youtube.com on Tue, 18 Aug 2009 02:38:57 PDT	Real Life Living with Ehlers-Danlos Syndrome episode 2 Real Life Living with Ehlers-Danlos Syndrome episode 2 In this episode, it shows all the braces I wear, some things that help manage my pain, my back surgery scar,etc. Rated: 5     Duration: 510 seconds     Video type: YouTube     Hosted by: www.youtube.com on Tue, 21 Apr 2009 16:21:29 PDT
EHLERS DANLOS SYNDROME EHLERS DANLOS SYNDROME Duration: 358000 seconds Hosted by: YouTube	Ehlers-Danlos: A Mystery Ehlers-Danlos: A Mystery Duration: 311000 seconds Hosted by: YouTube	EHLERS DANLOS SYNDROME - Dying to Live EHLERS DANLOS SYNDROME - Dying to Live Duration: 311000 seconds Hosted by: YouTubeHosted by: YouTube	Ehlers-Danlos Syndrome: Thisability Ehlers-Danlos Syndrome: Thisability Duration: 311000 seconds Hosted by: YouTubeHosted by: YouTubeHosted by: YouTube
EHLERS DANLOS SYNDROME Post it Animation EHLERS DANLOS SYNDROME Post it Animation Duration: 169000 seconds Hosted by: YouTube	EHLERS DANLOS SYNDROME (pictures) EHLERS DANLOS SYNDROME (pictures) Duration: 169000 seconds Hosted by: YouTubeHosted by: YouTube	Life with EHLERS DANLOS SYNDROME Life with EHLERS DANLOS SYNDROME Duration: 169000 seconds Hosted by: YouTubeHosted by: YouTubeHosted by: YouTube	Kristin Means - Life With EDS Kristin Means - Life With EDS Duration: 169000 seconds Hosted by: YouTubeHosted by: YouTubeHosted by: YouTubeHosted by: YouTube
Ehlers-Danlos Syndrome - CMC Splints Ehlers-Danlos Syndrome - CMC Splints Duration: 115000 seconds Hosted by: YouTube	Finger Splints - Ehlers-Danlos Syndrome Finger Splints - Ehlers-Danlos Syndrome Duration: 328000 seconds Hosted by: YouTube	EHLERS DANLOS SYNDROME EHLERS DANLOS SYNDROME Duration: 328000 seconds Hosted by: YouTubeHosted by: YouTube	Living with EHLERS DANLOS SYNDROME Living with EHLERS DANLOS SYNDROME Duration: 328000 seconds Hosted by: YouTubeHosted by: YouTubeHosted by: YouTube
Examples of hypermobility with EHLERS DANLOS SYNDROME Examples of hypermobility with EHLERS DANLOS SYNDROME Duration: 157000 seconds Hosted by: YouTube	Ehlers-Danlos Memorial Tribute Ehlers-Danlos Memorial Tribute Duration: 148000 seconds Hosted by: YouTube	EHLERS DANLOS SYNDROME EHLERS DANLOS SYNDROME Duration: 148000 seconds Hosted by: YouTubeHosted by: YouTube	What Is Ehlers-Danlos Syndrome? What Is Ehlers-Danlos Syndrome? Duration: 234000 seconds Hosted by: YouTube
Ehlers-Danlos: Discovery Health Medical Mysteries Ehlers-Danlos: Discovery Health Medical Mysteries Duration: 402000 seconds Hosted by: YouTube	Ehlers-Danlos Mystery Ehlers-Danlos Mystery Duration: 1526000 seconds Hosted by: Veoh	Ehlers-Danlos Syndrome Ehlers-Danlos Syndrome Duration: 177000 seconds Hosted by: YouTube	Things that have helped my EHLERS DANLOS SYNDROME Things that have helped my EHLERS DANLOS SYNDROME Duration: 230000 seconds Hosted by: YouTube
Ehlers-Danlos Syndrome Video PSA B Ehlers-Danlos Syndrome Video PSA B Duration: 230000 seconds Hosted by: YouTubeHosted by: YouTube	Ehlers-Danlos Syndrome Video PSA A Ehlers-Danlos Syndrome Video PSA A Duration: 230000 seconds Hosted by: YouTubeHosted by: YouTubeHosted by: YouTube	Vascular EHLERS DANLOS SYNDROME - Vote for HOPE Vascular EHLERS DANLOS SYNDROME - Vote for HOPE Duration: 270000 seconds Hosted by: YouTube	Ehlers-Danlos Syndrome Video PSA C Ehlers-Danlos Syndrome Video PSA C Duration: 270000 seconds Hosted by: YouTubeHosted by: YouTube
Backwards Piano Ehlers-Danlos Syndrome Backwards Piano Ehlers-Danlos Syndrome I wanted to post a better version of my original video (http://www.youtube.com/watch?v=DEpkH_viH7A). It still doesnt sound great because Im unable to reach... - www.youtube.com	Ehlers-Danlos Syndrome.... Nothing Hurts in my World. Ehlers-Danlos Syndrome.... Nothing Hurts in my World. I made this small piece about Ehlers Danlos, a connective tissue disorder. Sadly, many children and adults go on for years suffering from this painful condit... - www.youtube.com

Ehlers danlos syndrome : Photo Gallery

Ehlers–Danlos syndrome - Wikipedia, the free encyclopedia Ehlers–Danlos syndrome - Wikipedia, the free encyclopedia Ehlers–Danlos syndrome	4_Photo_Square_copy.gif 4_Photo_Square_copy.gif dults	Ehlers-Danlos Syndrome - Netter Medical Artwork Ehlers-Danlos Syndrome - Netter Medical Artwork Ehlers-Danlos Syndrome	Neck Pain and Ehlers-Danlos Syndrome | Pain Neck Blog - PainNeck. Neck Pain and Ehlers-Danlos Syndrome | Pain Neck Blog - PainNeck. Ehlers-Danlos Syndrome may be
Ehlers-Danlos syndrome ( Ehlers-Danlos syndrome ( in Ehlers-Danlos Syndrome.	Datei:Ehlers-Danlos syndrome 2.jpg – Wikipedia Datei:Ehlers-Danlos syndrome 2.jpg – Wikipedia Datei:Ehlers-Danlos syndrome	MayoClinic.com Health Library - Ehlers-Danlos syndrome MayoClinic.com Health Library - Ehlers-Danlos syndrome Loose joints in Ehlers-Danlos	médico estudiante. médico estudiante. and in certain breeds of
MayoClinic.com Health Library - Ehlers-Danlos syndrome MayoClinic.com Health Library - Ehlers-Danlos syndrome Elastic skin in Ehlers-Danlos	Behind-the-Scenes at the "Circus of Horrors" - ABC News Behind-the-Scenes at the "Circus of Horrors" - ABC News Ehlers-Danlos syndrome	DermIS - Ehlers-Danlos Syndrome ( DermIS - Ehlers-Danlos Syndrome ( Ehlers-Danlos Syndrome	Ehlers-Danlos syndrome ( Ehlers-Danlos syndrome ( in Ehlers-Danlos Syndrome.
Ehlers-Danlos Syndrome - Modern Medical Guide Ehlers-Danlos Syndrome - Modern Medical Guide Ehlers-Danlos Syndrome	Rheumatology Image Bank : Ehlers-Danlos Syndrome: Increased ... Rheumatology Image Bank : Ehlers-Danlos Syndrome: Increased ... Ehlers-Danlos syndrome is	Ehlers-Danlos syndrome, type VI Ehlers-Danlos syndrome, type VI An Ehlers-Danlos syndrome type	File:Ehlers-Danlos syndrome 3.jpg - Wikipedia File:Ehlers-Danlos syndrome 3.jpg - Wikipedia File:Ehlers-Danlos syndrome 3.
EHLERS DANLOS SYNDROME Causes Hyper Flexibility | Daily Postal EHLERS DANLOS SYNDROME Causes Hyper Flexibility | Daily Postal	facts about Ehlers-Danlos syndrome - True Knowledge facts about Ehlers-Danlos syndrome - True Knowledge	Atypical Symptom of Ehlers-Danlos Syndrome Impeding Diagnosis: Feeling ... Atypical Symptom of Ehlers-Danlos Syndrome Impeding Diagnosis: Feeling ...	File:Ehlers-Danlos syndrome 3.jpg - Wikimedia Commons File:Ehlers-Danlos syndrome 3.jpg - Wikimedia Commons
Ehlers-Danlos Syndrome - Netter Medical Artwork Ehlers-Danlos Syndrome - Netter Medical Artwork	EHLERS DANLOS SYNDROME - Page 6 EHLERS DANLOS SYNDROME - Page 6	An Ehlers-Danlos syndrome type VIA patient with cystic malformations ... An Ehlers-Danlos syndrome type VIA patient with cystic malformations ...	Entity page for Ehlers-Danlos syndrome Entity page for Ehlers-Danlos syndrome
Figure 35-2 Characteristics of Ehlers-Danlos Syndrome. (Photograph ... Figure 35-2 Characteristics of Ehlers-Danlos Syndrome. (Photograph ...	Ehlers-Danlos Syndrome Ehlers-Danlos Syndrome	Ehlers-Danlos Syndrome Awareness Bracelet Ehlers-Danlos Syndrome Awareness Bracelet	localisation: hands diagnosis: Ehlers-Danlos Syndrome localisation: hands diagnosis: Ehlers-Danlos Syndrome
Ehlers-Danlos syndrome can lead to very fragile skin that scars easily ... Ehlers-Danlos syndrome can lead to very fragile skin that scars easily ...	... looks like. It is a diagnostic feature of Ehlers-Danlos Syndrome ... looks like. It is a diagnostic feature of Ehlers-Danlos Syndrome	... Ehlers-Danlos syndrome with hypermobility and propensity to cardiac ... Ehlers-Danlos syndrome with hypermobility and propensity to cardiac	hypermobility EHLERS DANLOS SYNDROME - Health Reply - Professional ... hypermobility EHLERS DANLOS SYNDROME - Health Reply - Professional ...
ehlers-danlos syndrome ehlers-danlos syndrome ehlers-danlos syndrome	Rest in Peace Rest in Peace Rest in Peace	September 17 September 17 September 17	Where have I been??? Where have I been??? Where have I been???
"Doublejointed" "Doublejointed" "Doublejointed"	Hypermobile feet and ankles Hypermobile feet and ankles Hypermobile feet and ankles	Index along base of other fingers Index along base of other fingers Index along base of other fingers	Bendy fingers Bendy fingers Bendy fingers
Classic Classic Classic	Index along base of other fingers Index along base of other fingers Index along base of other fingers	Pinkie bent backwards- I can reach top of arm easily! Pinkie bent backwards- I can reach top of arm easily! Pinkie bent backwards- I can reach top of arm easily!	Thumb bending up a lot, and other fingers too Thumb bending up a lot, and other fingers too Thumb bending up a lot, and other fingers too
Pinkie along the base of other fingers Pinkie along the base of other fingers Pinkie along the base of other fingers	Index finger bent backwards Index finger bent backwards Index finger bent backwards	Kira: "I can kill you with my mind!" :D Kira: "I can kill you with my mind!" :D Kira: "I can kill you with my mind!" :D	Frank Burple, Ken and Sven Frank Burple, Ken and Sven Frank Burple, Ken and Sven
How I Stopped Worrying About Ehlers-Danlos Syndrome and Started My Own Video ... How I Stopped Worrying About Ehlers-Danlos Syndrome and Started My Own Video ... When I was around five, my dad realized that he had a rare genetic collagen disease called Ehlers-Danlos Syndrome, Hypermobility Type. Most people just call it EDS III—probably because nobody seems to know how to pronounce it. Worse, he realized that ...	My Olympic dream My Olympic dream Fourteen-year-old Lucy Fellows was nominated by her mother Louise for bravely coping with Ehlers-Danlos syndrome (EDS) - a group of inherited connective tissue disorders. Despite suffering from the condition, the Stourport High School and VIth Form ...	Slaithwaite toddler Finley Green gets a Christmas Wish after 16 months in and ... Slaithwaite toddler Finley Green gets a Christmas Wish after 16 months in and ... For Jennie and Jamie, of Slaithwaite, it's something for them to look forward to as all three of their children have Ehlers danlos syndrome, which means they are fed through a tube in their stomachs. Jennie said: “Finley was born five weeks early and ...	THE REAL-LIFE THUMBELINA THE REAL-LIFE THUMBELINA Dr Harbison believes that as well as RSS Amelie has Ehlers-Danlos syndrome, a lack of collagen in the connective tissues which makes it difficult for her bones to stay in place. Dr Harbison has warned that unless Amelie is given growth hormones she may ...
One Tulsa woman sees the true meaning of Christmas One Tulsa woman sees the true meaning of Christmas She has Ehlers danlos syndrome, a rare condition that affects her joints, bruises her skin and damages blood vessels. Mazie told FOX23 she wasn't sure she'd actually get the books because she would have to pick it up at the hallmark store. ...	Jerry Large A safe way to talk about race Jerry Large A safe way to talk about race She went back to school, earned a degree in public policy from Harvard, and was working as an analyst in Washington, DC, in 2002 when she was diagnosed with a form of Ehlers-Danlos syndrome, which weakens connective tissue and can be painful and ...	Ulster boy, 11, creates charity to give gifts to patients at hospital Ulster boy, 11, creates charity to give gifts to patients at hospital Corvin has a hypermobility form of Ehlers-Danlos syndrome. His mother, April Corvin, 38, said it makes his joints dislocate easily, among other issues. He has been a patient of Northern Dutchess Hospital but sees specialists for his condition at the ...	B.C. Hydro hole causes accident B.C. Hydro hole causes accident I'm not the only one," said Monson, who suffers from reflex sympathetic dystrophy and Ehlers-Danlos syndrome and is unable to walk more than a very short distance. The sink in the sidewalk remained there for a week after her accident. ...
An Empty Shoebox, A Bare Christmas An Empty Shoebox, A Bare Christmas She was orphaned at 11 when her mother died in front of her from a ruptured artery traceable to the fatal Type IV variant of Ehlers-Danlos syndrome—a disease that killed her sister a couple decades later. Martinson only went to school through eighth ...	Diseases of the Brain: What is a Brain Aneurysm? Diseases of the Brain: What is a Brain Aneurysm? For example, risk factors that are present at birth include inherited disorders, such as polycystic kidney disease or inherited connective tissue disorders, like Ehlers-Danlos syndrome. If a person has an abnormally narrow aorta, she has a higher risk ...	Disabled people on benefits shouldn't have to fear being active Disabled people on benefits shouldn't have to fear being active She has Ehlers-Danlos syndrome, a painful condition that causes fatigue, muscle weakness and dislocations of joints. She tries to go on a deathwalk most days with some difficulty, but believes it is worthwhile to get out and be mobile, as suggested by ...	Martial arts family shrugs off adversity to land FIVE black belts Martial arts family shrugs off adversity to land FIVE black belts It is thought he has the condition, Ehlers-Danlos syndrome, which results in joints spontaneously dislocating. The teenager has to wear leg braces and is awaiting the results of a series of genetic tests. Despite this, Bev remains upbeat and insists ...
Vermont ballerina needs life-saving surgery Vermont ballerina needs life-saving surgery Phillips has Ehlers danlos syndrome. It robs her body of connective tissue function. In her case, the collagen in her trachea can't support itself, so the airway to her lungs is at risk of collapse. "It'd be nice to be able to breathe normally again," ...	J'ai testé pour vous... le procès du "Mur" J'ai testé pour vous... le procès du "Mur" C'est le côté positif du handicap, les jaloux prenez mon syndrome d'Ehlers-Danlos avant de crier au privilège, après on en reparlera. J'ai pu donc admirer les magnifiques croquis de mon voisin de gauche, un belge néerlandophone qui venait de sortir un ...

Ehlers danlos syndrome : Latest News, Information, Answers and Websites

Ehlers–Danlos syndrome - Wikipedia, the free encyclopedia

Ehlers–Danlos syndrome (EDS) (also known as "Cutis hyperelastica") is a group of inherited connective tissue disorders, caused by a defect in the synthesis of ...

Chest Pain or EHLERS DANLOS SYNDROME and TOS? - NeuroTalk Support ...

Health Conditions M - Z > Thoracic Outlet Syndrome ... Hi Everyone, I am 23 now and was diagnosed with TOS when I was in junior high school ... Thanks for sharing ...

Do you know anything about EHLERS DANLOS SYNDROME and its sub-types?

I have a form of EDS and would like to get a sense of the awareness level of the general public.
Answer: Yes, lots but I hadn't heard about it before my niece got diagnosed. There is a group of about 30 people in our localish area that get together that either have it or their children do (generally it's both). My niece has either type 1 or 2, I forget which but it's the type with both the skin and the hypermobility. I've been told I have hypermobility but it's hard to distinguish between EDS and just being hypermobile so I really don't know if I've got EDS type 3 (I think that's the hypermobile type) or not. Either way there are a lot of similarities. Most people know hypermobile people but refer to them as being 'double jointed' but what annoys me is when I say my knee troubles have been caused by the hypermobility (my knees go a bit backwards, despite all my muscle tone and my physio told be the hypermobility is the cause of the issue) some people will try and convince me that I'd just flexible and it isn't actually an issue at all. I guess I have to be thankful I don't have it as bad as some do (my niece gets tired very easily and because of that and her really delicate skin she doesn't get to participate in sports). I'm only 19 though so I'm concerned about the future (pain, arthritis, not carry babies to term, dislocation). Edit: Just going to add that about 6 months ago I had no idea that there was a reason I suck with fine motor skills and got in trouble for the way I held my flute and my pencil grip. I had no idea my knees went backwards at all and I thought everyone's thumb could touch their forearm. My boyfriend thought I was weak because I like to hold a saucepan with both hands just in case my wrist randomly gives way again.
Category: Anthropology

EHLERS DANLOS SYNDROME | Point of Insight

Enter the e-mail address you used when enrolling for Britannica Premium Service and we will e-mail Ehlers danlos syndrome password to you. Search Site: Advanced Search Home Encyclopdia Britannica calyx (anatomy) ...

EHLERS DANLOS SYNDROME? What do you think? - Related Indian Videos ...

I show you guys some of the things that I can do with my joints. EDS can cause POTS and I do have some of the symptoms so I was wondering what you guys think about it.

Ehlers-Danlos syndrome: All - MayoClinic.com

Ehlers-Danlos syndrome — Comprehensive overview covers symptoms, causes, treatment of this connective tissue disorder.

Streetscapes/East 82d Street; A Tale of 2 Town Houses, All But Empty for Years

SPACE is tight in New York, especially on the Upper East Side. So why have two Beaux-Arts town houses just off Fifth Avenue on East 82d Street been all but empty for years? At 2 East 82d, its a complicated zoning deal from the 1970s; at 3 East 82d, the architect says God only knows. But with both buildings there is change ahead. East 82d - Two town houses on East 82d Street are being converted into apartment houses; photos (M) - By CHRISTOPHER GRAY

EHLERS DANLOS SYNDROME and Heart transplants?

My brother was just told he needs a heart transplant! He is 45 years old and is very very week currently His heart ejection fraction rate is at 15% was 30% 3 months ago and at 65% one year ago. He also has Ehlers danlos syndrome, connective tissue disorder. He was told if it was not for his pacemaker and difibulator he would not be alive! Trust me we are all scared to death. What I need to know is he a candidate for such a serious surgery considering he has Ehlers danlos syndrome. Please let me know what you know.
Answer: I have Ehlers-Danlos Syndrome, and I think he does need the surgery. There are alot types of EDS; one is heart related. What type of EDS does he have? There are issues with skin and surgery with EDS, just let the docs know he has than. And what is his problem with his heart? I also have a daughter with Congenital Heart Defects and has had two open heart surgerys and still needs one more this spring. I think that if the doctors are saying he needs it I would get it. They don't throw that word around lightly (transplant). And his ejection fraction rate is very low. It is scary and I have been thru alot since my daughter was born. Try to keep positive and pray! Miracles do happen! My daughter is one of them. I will be praying for him and you.
Category: Heart Diseases

Ehlers-Danlos syndrome - MayoClinic.com - Mayo Clinic

Ehlers-Danlos syndrome — Comprehensive overview covers symptoms, causes, treatment of this connective tissue disorder.

What Ailed Toulouse-Lautrec? Scientists Zero In on a Key Gene

DOCTORS, like anyone else, cannot help being fascinated by the sorrows and afflictions of the famous, and nothing can give a rare disease more cachet than to link it to one of historys luminaries. Perhaps the most celebrated dwarf of all times was Henri de Toulouse-Lautrec, the exuberant portraitist of cabaret dancers and prostitutes and gleeful - By NATALIE ANGIER

How I Stopped Worrying About Ehlers-Danlos Syndrome and ...

Corvin has a hypermobility form of Ehlers-Danlos syndrome. His mother, April Corvin, 38, said it makes his joints dislocate easily, among other issues. He has been a patient of Northern Dutchess Hospital but sees specialists ...

Ehlers-Danlos Syndrome: MedlinePlus

Ehlers-Danlos syndrome (EDS) is a group of inherited disorders that weaken connective tissues . Connective tissues are proteins that support skin, bones, blood ...

Ehlers-Danlos National Foundation

The Ehlers-Danlos National Foundation provides information about Ehlers- Danlos Syndrome and support to people with EDS and related disorders.

CASES; After a Multitude of Tests, an Answer From Grandmothers Memory

My daughters second pregnancy was a nightmare. A screening blood test suggested that her unborn baby might have Down syndrome. Rejecting amniocentesis, which could provide an exact diagnosis but carried the risk of miscarriage, my daughter decided to continue the pregnancy regardless of the outcome. By 28 weeks, with preterm labor and high blood - Courtney Davis Cases article describes diagnosis and treatment of granddaughters Ehlers-Danlos syndrome, which is group of related connective tissue disorders (S) - By CORTNEY DAVIS

EHLERS DANLOS SYNDROME Symptoms | Daily Postal

Ehlers danlos syndrome (EDS) is a group of inherited disorders that affect your connective tissues — primarily your skin, joints and blood vessel walls. ...

VIDEO: Jordans wish -- 11-year-old spreads cheer at Northern Dutchess Hospital

RHINEBECK — Jordan Corvin, 11, of Saugerties, who suffers from Ehlers-Danlos Syndrome, a disorder affecting connective tissues that causes acid reflux and seizures, has spent a lot of time in and out of hospitals over the years. Knowing how ...

Ehlers-Danlos syndrome - Genetics Home Reference

Ehlers-Danlos syndrome is a group of disorders that affect connective tissues, which are tissues that support the skin, bones, blood vessels, and other organs. ...

Ehlers-Danlos syndrome: Connective-tissue disorder comes in many ...

From Deseret News archives: Ehlers-Danlos syndrome: Connective-tissue disorder comes in many forms

Has anyone heard of EHLERS DANLOS SYNDROME?

Has anyone heard of Ehlers danlos syndrome i am trying to raise awareness in anyway i can any ideas.?
Answer: Yes I have, I have it! Along with Reflex Sympathetic Dystrophy and POTS syndrome, which are both rare diseases. You can spread awareness on youtube by making a video and then post it on facebook and tell people to share it. If you wanna watch my video for RSD here it is, you can check out my other videos too! http://www.youtube.com/watch?v=m3PWek9XVhg
Category: Other - Health

Slaithwaite toddler Finley Green gets a Christmas Wish after 16 months in and out of hospital

For Jennie and Jamie, of Slaithwaite, it’s something for them to look forward to as all three of their children have Ehlers danlos syndrome, which means they are fed through a tube in their stomachs. Jennie said: “Finley was born five weeks early and ...

How I Stopped Worrying About Ehlers-Danlos Syndrome and ...

Dr Harbison believes that as well as RSS Amelie has Ehlers-Danlos syndrome, a lack of collagen in the connective tissues which makes it difficult for her bones.

How I Stopped Worrying About Ehlers-Danlos Syndrome and ...

Enter the e-mail address you used when enrolling for Britannica Premium Service and we will e-mail Ehlers danlos syndrome password to you. Search Site: Advanced.

Ehlers-Danlos Syndrome Network

Oct 28, 2011 ... Ehlers danlos syndrome (EDS) is a heterogeneous group of heritable connective tissue disorders, characterized by articular (joint) ...

Ulster boy, 11, creates charity to give gifts to patients at hospital

“I don’t want people to be bored.” Corvin has a hypermobility form of Ehlers-Danlos syndrome. His mother, April Corvin, 38, said it makes his joints dislocate easily, among other issues. He has been a patient of Northern Dutchess Hospital ...

I have Ehlers-Danlos Syndrome. Which medicines should i talk to my doctor about, for my pain?

Sometimes the pain in my joints is severe. I sometimes hurt so bad, i can not move. I have to find something appropriate to manage my pain. Any help would be appreciated.
Answer: I think it would be a good idea to ask your doctor which meds to consider rather than discuss ones not recommended to you by the medical professional who diagnoses you
Category: Other - Diseases

Ehlers-Danlos syndrome - PubMed Health - National Center for ...

Causes, incidence, and risk factors. There are six major types and at least five minor types of Ehlers-Danlos syndrome (EDS). A variety of gene mutations ...

How likely is Ehlers-Danlos Syndrome if one parent has it?

I dont have Ehlers-Danlos Syndrome. My girlfriend does. If we ever do have children at all its going to be far off in the future. I already wonder how good an idea it would be, though, because of her EDS. If we had a kid together instead of adopting how likely would it be to have EDS too? I know its inheritable but not how inheritable it is.
Answer: Your girlfriend should speak to her geneticist. He/She will be able to identify how likely she is to pass it on. No one on here is going to be able to tell you exactly, but I would assume it'd be less than 50% as she would just be one of the parents. Good luck. ....
Category: Other - Diseases

Is it possible to have symptoms from several different types of ehlers-danlos syndrome?

Is it possible for someone with CLASSICAL EHLERS-DANLOS SYNDROME to present most or all of the symptoms from the following types. ARTHROCHALSIA, KYPHOSICOLIS, HYPERMOBILITY, DERMATOSPARAXIS, AND TENASCIA-X DEFICIENT.
Answer: Ehlers-Danlos syndrome is a group of rare genetic disorders affecting humans and domestic animals caused by a defect in collagen synthesis. Depending on the individual mutation, the severity of the disease can vary from mild to life-threatening. There is no known cure. Treatment is supportive.(Wikipedia) Ehlers-Danlos syndrome is a hereditary collagen disorder characterized by articular hypermobility, dermal hyperelasticity, and widespread tissue fragility. Diagnosis is clinical. Treatment is supportive.(Merck) Please see the web pages for more details on Ehlers-Danlos syndrome.
Category: Other - Diseases

How I Stopped Worrying About Ehlers-Danlos Syndrome and ...

When I was around five, my dad realized that he had a rare genetic collagen disease called Ehlers-Danlos Syndrome, Hypermobility Type. Most people just call it EDS III—probably because nobody seems to know how to ...

I have just been diagnosed with Ehlers-Danlos syndrome (joint cartilage) should i stop playing sport?

Diagnoses is Ehlers-Danlos Syndrome of thecartilage joint. I am worried although i have played sport most of my life i recently suffered from a dislocated jaw whilst playing soccer which lead to my diagnoses. Is it worth the risk? Are there any other suffers that enjoy sport? And can i make playing sport safer?
Answer: The classification you give - of the cartilage joint - is confusing. Were you give a type, such as hypermobility or classical? If your symptoms are primarily joint related, you might want to consult with a physical therapist to make sure your joints are strong. The PT would also be able to give you exercises to maintain the strength you currently have. I have played sports my entire life and have EDS, so it is possible. I have to brace my weaker joints and limit both the level of hard physical contact and the amount of time I spend running. Your situation will be different, so pay close attention to any aches or pains - no matter how minor - make changes your body says are necessary and find a doctor or therapist who is willing to work with you so you can stay active.
Category: Other - Diseases

Is it too risky for someone with Ehlers-Danlos Syndrome to have a child?

My sister has Ehlers-Danlos syndrome type three, and it is a very severe case... She has always wanted to have children, and Im wondering if she will ever be able to bear children on her own, or if she would have to adopt, or have me carry the child for her.
Answer: my wife has eds iii and we now have a 21day old wonderfully healthy sun. All i would say is seriously consider a c-section due to risk of prolapse and all sorts of nast stuffy if she had a naural birth (my wife had a c-section as highly recommended)
Category: Other - Diseases

EHLERS DANLOS SYNDROME | We sight trends!

Sacraments of Thanksgiving Catholic Living Jack's December Saints Guidelines 4:14:57 2010 JavaScript Audio Priests Tag , Ehlers danlos syndrome Pages-default-300 Features Contact 90 Prayer FAQs Mary Christian St. ...

Ehlers-Danlos Syndrome - Diseases & Conditions - Medscape Reference

Ehlers-Danlos syndrome (EDS) is the name given to a group of more than 10 different inherited disorders; all involve a genetic defect in collagen and ...

Ehlers-Danlos National Foundation

The Ehlers-Danlos National Foundation provides information about Ehlers-Danlos Syndrome and support to people with EDS and related disorders.

Ehlers-Danlos Syndrome (EDS) Causes, Symptoms, Treatment and ...

Get the facts on Ehlers-Danlos syndrome (EDS) symptoms (joint hypermobility, skin laxity), causes (inherited), diagnosis, types, treatment and research.

Ehlers-Danlos syndrome - MayoClinic.com

Ehlers-Danlos syndrome — Comprehensive overview covers symptoms, causes, treatment of this connective tissue disorder.

does anyone know of a GP in Islington North London UK, who DOES know about EHLERS DANLOS SYNDROME?

I find my GP very uncomfortable. None of them understand my conditions. I get alot of answers here so I thought it maybe possible someone COULD help.I avoid my Drs and dont end up getting the help I need because of it. I have Ehlers danlos syndrome, postural tachycardia syndrome and chronic pain syndrome. I am also 34, and not ready for my body to be like this yet!! Thank you in advance.
Answer: Talk to the support group for help in your area - http://www.ehlers-danlos.org/
Category: Other - General Health Care

CIENCIASMEDICASNEWS: Ehlers-Danlos Syndrome: MedlinePlus NEW TOPIC ...

Aporte a la rutina de la trinchera asistencial donde los conocimientos se funden con las demandas de los pacientes, sus necesidades y las esperanzas de ...

Ehlers-Danlos Syndrome

Sep 29, 2011 ... Ehlers-Danlos syndrome (EDS) is the name given to a group of more than 10 different inherited disorders; all involve a genetic defect in ...

Who is aware of EHLERS DANLOS SYNDROME?

This is a connective tissue disorder.There are different types of EDS. Vascular Ehlers danlos syndrome is the most severe type, resulting in early death. Many people have EDS and are never diagnosed. A skin biopsy is the way to test for EDS.May was Ehlers Danlos Awareness Month, yet the majority of people have never heard of this disorder. Tests, information and links are available.
Answer: I'm a doctor. I'm aware of Ehlers danlos syndrome (EDS). It's due to abnormalities in collagen. You say that "many people have EDS". The overall frequency of the condition in the UK is 1/150,000. The symptoms of the EDS type 1 can be pretty serious and if you have it you'll probably know. Other EDS types are milder and more difficult to diagnose. It's good that there is a EDS awareness month, but as with most diseases that are relatively rare, publicity is poor unless there is someone famous to promote it.
Category: Other - Diseases

B.C. Hydro hole causes accident

Im not the only one," said Monson, who suffers from reflex sympathetic dystrophy and Ehlers-Danlos syndrome and is unable to walk more than a very short distance. The sink in the sidewalk remained there for a week after her accident. She took her concerns ...

Ehlers-Danlos syndrome - Genetics Home Reference

Ehlers-Danlos syndrome is a group of disorders that affect connective tissues, which are tissues that support the skin, bones, blood vessels, and other organs.

How I Stopped Worrying About Ehlers-Danlos Syndrome And Started My Own Video Game Blog

Hi, my name is Avery; I’m a 15-year-old gamer and blogger. I’m shocked and amazed that I’ve been asked to write a guest post for Kotaku! Am I famous now, or what? I’ve recently started a cool gaming blog, which has a bit of a story ...

Can you have Ehlers-Danlos syndrome without a parent having it?

Just curious if you can have Ehlers-Danlos syndrome without a history of it in your family. Can your parents be carriers and not exhibit the syndrome? Or is it that someone related to you must have it? Also- how severe do the loose joints have to be? Thanks!
Answer: The inheritance can be X-linked recessive, autosomal dominant, and autosomal recessive. One of your parents is a carrier for EDS, but doesn't display symptoms of any type of EDS. I am the first one in my family to present with the actual disease, so it isn't unheard of for someone to suddenly present with no prior family history. Joint looseness varies from type to type, but its a common thread to have joint looseness enough to allow for even partial dislocation. Keep in mind it isn't JUST the joints affected by EDS. There are other symptoms, too. I have type 3 and I suffer from partial to full dislocations of joints A LOT, as well as almost all of the other symptoms such as the scarring and even the prolapsed valve in my heart. The different are types 1, 2, 3, 4, 6, 7A, 7B, and 7C of EDS. 3 is hyper flexible and also the most common (with 1 in 10000-15000), 7A, B, and C are the least common (from 40 to even 10 known cases in the world) with very severe symptoms, C having the sagging and very very easily torn skin. If you have any cause for concern with having EDS, visit your general care physician, and if they don't have the answers, find a geneticist and have yourself tested and examined for it. I hope this helps you. Best of luck.
Category: Other - Diseases

Ehlers-Danlos Syndrome (EDS) Causes, Symptoms, Treatment and Types ...

Get the facts on Ehlers-Danlos syndrome (EDS) symptoms (joint hypermobility, skin laxity), causes (inherited), diagnosis, types, treatment and research.

Ehlers-Danlos Syndrome: MedlinePlus

Dec 15, 2011 ... Ehlers-Danlos syndrome (EDS) is a group of inherited disorders that weaken connective tissues. Connective tissues are proteins that support ...

I am 18 years old and I have EHLERS DANLOS SYNDROME,What do I need to know to keep my self healthy?

I need to know what I need to do in order to keep myself healthy. I know exeriseing is one thing. I have a swimming pool so I was going to try swimming,But what else do I need to do? What is good for me to eat do etc. I need all the advise i can get!
Answer: Ehlers danlos syndrome will depend greatly on what classification (type) you have been given. Sounds like yours may be a "type 4," or "vascular." Usually there are support groups or information on this disease. You're likely seeing a specialist for this kind of matter, so let he/she guide you as to what you SHOULD or SHOULD NOT do. Best of luck!
Category: Other - Diseases

Ehlers–Danlos syndrome - Wikipedia, the free encyclopedia

Ehlers–Danlos syndrome (EDS) (also known as "Cutis hyperelastica") is a group of inherited connective tissue disorders, caused by a defect in the synthesis of ...

LETTERS; A Spotlight on Shaken Baby Syndrome

To the Editor: Re Anatomy of a Misdiagnosis by Deborah Tuerkheimer (Op-Ed, Sept. 21): Shaken Baby Syndrome/Abusive Head Trauma is a real and recognized public health problem. Mainstream scientists and medical organizations like the American Academy of Pediatrics, the National Association of Medical Examiners and the American Academy of

I need to know what type of syndrome this is, cause its not exactly ehlers-danlos syndrome?

I have very elastic skin, hyper-extensive joints, and stretching, but I cant dislocate my joints easily at all, and I can stretch beyond what most people can/ my skin collagen is very high, so I have very tough/strong skin but very elastic, and I dont bruise easily at all, so its like EDS but without the negatives so I dont know what I have?
Answer: You are just lucky? Ehlers-Danlos symptoms vary quite a bit, so you could just have a different subtype or expression. Be careful not to injure yourself.
Category: Other - Diseases

What is the cause of ehlers-danlos syndrome?

Does anyone know the cause of ehlers-danlos syndrome? Like the molecular cause, I know its because of a mutation of glycine to serine but could someone please elaborate? thanks!!
Answer: Mutations in the ADAMTS2, COL1A1, COL1A2, COL3A1, COL5A1, COL5A2, PLOD1, and TNXB genes cause Ehlers-Danlos syndrome. Some of these genes (COL1A1, COL1A2, COL3A1, COL5A1, and COL5A2) provide instructions for making proteins that are used to assemble different types of collagen. Collagens are molecules that give structure and strength to connective tissues throughout the body. Other genes (ADAMTS2, PLOD1, and TNXB) provide instructions for making proteins that process or interact with collagen. Mutations that cause the different forms of Ehlers-Danlos syndrome disrupt the structure, production, or processing of collagen, preventing these molecules from being assembled properly. These defects weaken connective tissues in the skin, bones, and other parts of the body, resulting in the characteristic features of this condition. The inheritance pattern of Ehlers-Danlos syndrome varies by type. The arthrochalasia, classic, hypermobility, and vascular forms of the disorder usually have an autosomal dominant pattern of inheritance. Autosomal dominant inheritance means that one copy of the altered gene in each cell is sufficient to cause the disorder. In some cases, an affected person inherits the mutation from one affected parent. Other cases result from new (sporadic) gene mutations. These cases occur in people with no history of the disorder in their family. The dermatosparaxis and kyphoscoliosis types of Ehlers-Danlos syndrome, and some cases of the classic and hypermobility forms, are inherited in an autosomal recessive pattern. In autosomal recessive inheritance, two copies of the gene in each cell are altered. Most often, the parents of an individual with an autosomal recessive disorder are carriers of one copy of the altered gene but do not show signs and symptoms of the disorder.
Category: Medicine

Where and how is Ehlers-Danlos Syndrome painful?

Does it hurt in anyway and what type of pain is it? Id prefer if someone who either has this syndrome or is well acquainted with the syndrome to answer the question, so they can describe the type of pain. Like, burning, searing, prickling, ect.
Answer: I have EDS so I can answer for you :) It hurts pretty much everywhere, depending on which kind of EDS you have. I have hypermobility type so I have extremely flexibility. It's painful because the collagen in ligaments etc. doesn't work correctly so everything stretches too far. I get a lot of dislocations because my joints just can't hold themselves together properly, so that's a very common pain. The muscles also have to work harder to try and hold my body together, so I get a lot of muscle pain as well. The kind of pain is hard to describe, it really depends on why it hurts. But it's the typical kind of pain you'd get from a dislocation or muscle ache.
Category: Skin Conditions

How I Stopped Worrying About Ehlers-Danlos Syndrome and ...

I know this is not craft related, but it will occasionally impact this blog. I've briefly mentioned in the past that I have some medical issues that have ca.

Is EHLERS DANLOS SYNDROME associated with Sarcoidosis?

I would like to know if the two could be associated/related with eachother. Please and Thank You!
Answer: Not that I am aware of ... it is usually considered on the differential diagnosis of a specific subtype of EDS
Category: Respiratory Diseases

How I Stopped Worrying About Ehlers-Danlos Syndrome and ...

Dr Harbison believes that as well as RSS Amelie has Ehlers-Danlos syndrome, a lack of collagen in the connective tissues which makes it difficult for her bones to stay in place. Dr Harbison has warned that unless Amelie is given growth ...

Ehlers–Danlos syndrome: Definition from Answers.com

Definition The Ehlers-Danlos syndrome (EDS) refers to a group of inherited disorders that affect collagen structure and function. Genetic abnormalities in the ...

What is EHLERS DANLOS SYNDROME? « peakshow

This is for anyone who has some questions about what exactly EDS is… This information has been gathered from various resources online in an effort to ...

The Olympic torch burns brightly for brave Lucy (From Worcester News)

Fourteen-year-old Lucy Fellows was nominated by her mother Louise for bravely coping with Ehlers-Danlos syndrome (EDS) – a group of inherited connective tissue disorders. Despite suffering from the condition, the Stourport High School and Sixth Form ...

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